Kip, Angie, Noah and Lily

Wednesday, April 7, 2010

Hogan continues to battle!

I loved hearing Noah say "I love him" when he saw baby Hogan
Noah loved seeing his little brother and his mom today!!

My sister Robin and her son Logan drove down from Maryland to see Hogan tonight.

Angie enjoying one of the times she can hold Hogan.
A loving Mother.
Hogan without some of his accessories!!!


And we know that God causes everthing to work together for the good of those who love God and are called according to his purpose for them. Romans 8:28 NLT

Dear Hogan,

I wanted to let you know how happy I was that you had a great night. You didn't set off any alarms and you didn't lose your IV or anything last night! I am looking forward to another "guys night out" in the NICU with you tonight. I hope that your night is just as good as last night!

You had another first tonight. You got to meet your cousin Logan and your Aunt Robin from Maryland. They were impressed with your good looks and by the fact that you get to eat "fries and a shake" before you eat your meal every night! Your big brother Noah also came to see you today. He loves you so much Hogan. He is proud of his baby brother! You also had your first ultrasound of your stomach, gallbladder and kidneys to make sure everything is working the way it should. Dr. Morales had a couple of concerns. I know you didn't mind. You are a tough guy. You seem to like fighting through difficult situations!

Also, I know you have got to be tired from all of the past few days. You just take each battle as though you enjoy them! This morning your mom and I met with hospice to discuss plans to take you home if things continue improving. It sounds like your equipment is going to be delivered to our house on Friday morning and your mother and I will be trained to use the equipment Friday afternoon. I know it's a little scary but it's just in case Dr. Morales feels good enough to send you home with us next week. We won't take you home with us unless your environment will be almost as good as your current environment without the full time incredible nurses that you have here at St. Mary's. It seems as though hospice is going to be great though Hogan. They have been so good through your journey staying in touch with us and following your fight to live! They are praying for you and encouraging you too! The messages, prayers and notes keep coming in Hogan. I can't wait to tell you about all of them. I had someone from Denmark contact me today to let me she was praying for you. God is using your little body. I am so proud of you Hogan.

Dr. Morales did take off your lights today. No more shades for the moment! You also got to take off your IV! You have come so far this week. I know that you have major battles ahead and you want to go home with us but I can look at you and tell what you are thinking....Don't worry about tomorrow, for tomorrow will bring it's own worries. Today's trouble is enough for today! Mat. 6:34 We can make plans but the Lord determines our steps. Proverbs 16:9 I totally understand Hogan! We will make plans but we are going to pray hard and trust God that just like in the past few months that God is with you and he will help us make a peaceful decision. Hogan, I started thinking about everything that I needed to get done this afternoon and started stressing myself out. It didn't take but a few minutes to think again about what I was stressing over and realize that I wasn't thinking clearly. Here you are with your entire body not really working correctly and you are fighting through every breath. You should be the one stressed and your aren't. You have a look of complete peace about you Hogan. I am so proud of you and thankful that you are here.

I do hope that we can take you home with us but I am just happy to be sitting beside you typing tonight. You have inspired me to "make memories". You have inspired me to attack life and enjoy every battle. God is teaching me while I watch you battle every day. Thank you Hogan.

I love you.

13 comments:

  1. wow kip, best post yet, gave me chill bumps

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  2. I am praying for your family and for Hogan's strength! Congratulations on your beautiful boy!

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  3. We are so proud of Hogan! Kip, your words of encouragement to your son are amazing. Thank you for sharing these thoughts. Hogan is so beautiful! We check on his progress throughout everyday and continue to pray for the whole family. God Bless! -Matt and Megan S.

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  4. We are praying for a peaceful night! Thanks for sharing your journey with us. We love you, Hogan!

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  5. Kip and Angie, I wanted to let you know that I am praying for you, Hogan, and your entire family. Chan and Julie are in my Sunday School class in Atlanta. We love them and now we love you too. Thank you for being brave in sharing your story, the struggle and God's glory. You seem awfully clear-headed and it is a magnificient testimony of God's hand on you, your faith, and the hope and conviction of heaven, of our spirits that will never die. If there is anything we can do to support you through this time, please let us know. I will continue to pray for you and Hogan, your warrior son who unites so many through the power of God's love!

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  6. Dear Dominy family,

    I do not know you personally, but please know that Hogan and your family are in my thoughts and prayers! What an inspiration your family serves for so many families dealing with medical problems! I pray daily that Hogan will thrive and be able to come home. Thank you for your willingness to share Hogan's journey!

    Addie Colwell

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  7. Kip your letters to Hogan make me cry every morning when I log on. Your journey, though not easy, is an inspiration to us all! Hogan is definitely teaching us all lessons and to slow down and celebrate more!

    You guys are covered in our prayers!

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  8. Dearest Hogan,

    Elford and I check on you thru your Daddy's words every day. You are such a little fighter and so beautiful at the same time. Our children ask us every night to see your pictures and want to know how you are doing. You too are very blessed with a mommy and daddy who are so faithful to our Lord. Your family is reminding my family to trust Him completely and reminding us what a miracle each life is here on this earth. You are precious and we send our love to you constantly!

    Love,
    Elizabeth, Elford, Elford West and Anna

    P.S. I am so happy you are getting to meet all your family!

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  9. Kip, Angie & Family,

    Kip I'm not sure you will recognize my last name, now, since it was not as you and your Mom knew me at Trinity. I just had to send a note to tell you that your faith and courage are such an inspiration to me, and I know that not only your Mom but your Heavenly Father much be so proud of you and Angie.

    So many people are praying for Hogan and his family. The folks at our Church are praying for all of you, and we are following Hogan's journey.

    I know that Hogan is very special to God. His life is bringing glory to his Father, too. May God continue to bless all of you with everything you need.

    "'For the mountains may be removed and the hills may shake, But My lovingkindness will not be removed from you, And My covenant of peace will not be shaken,' says the Lord, who has compassion on you." Isa. 54:10

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  10. Kip, Angie, Noah, Lily and Hogan,
    I am so inspired when I read your blog. I am so glad that Hogan is doing as well as he is. He is amazing, just like his family. I know that you are all glad to have your sister and nephew home to meet Hogan.
    Angie, I am so glad that you had some time with Noah yesterday. He is precious.
    I continue to pray, believe and expect many more miracles!!!!! Go Hogan Go!!!!
    I love you all,
    Linda

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  11. I just heard about your situation and this blog from Robbie Woelfl and Justin Woodall. You are a shining testimony to the Lord during this most difficult season. Keep the faith and fight the good fight of faith. Know we are praying for you. 2 Peter 1:3,
    Pastor David Holt

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  12. Hogan is a true miracle and a blessing! What lessons he teaches to us all! I do not know your family personally, but I have been praying for you and will continue to do so. This tiny warrior has made a mark on my life.

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  13. Hogan, you are a little warrior, stay strong! You have touched so many people. We hope to come visit you again real soon (hopefully in the next day or two) We all love you so much!Thanks Kip for the updates, I check the blog several times a day. We continue to pray for each of you! We love you all!~Nathan and Leah

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